This is an update written by my xh's wife Amy. One blessing that has come out of all this is finally after 25 years post our divorce, having some kind of relationship with them. It's also one where we are all looking at the same picture and working amongst ourselves to find workable options. Amy is a clear thinker and a say what you mean person as much as I am. We are on the same page with this daughter.
Update via Amy McC (ty Amy for taking notes! I uh...used another method...)
So we all met with Dr. Cullen this morning.(Jan 21) He's the A team for this type of cancer. (eta..Dr Cullen strongly advised us not to transfer Liz from UMD MC and we concurred.)
Elizabeth will finish this course of chemo on Monday. They will evaluate her then to make sure that she is eating, is mobile and is able to manage the pain. She will still have the headaches but the Dr. felt that the chemo will have lessened the pain to a level which would be managed by prescription drugs. Right now Elizabeth is very nauseated and has not been able to keep food down because of the chemo. Also she dozes most of the time and has been reluctant to get out of bed.
Upon her release she will be going to stay with her mom and Dick in Annapolis. She will have an appointment with Dr. Cullen in about a week and at that time they will set up the next round of chemo. That next round would occur in about 3 weeks. Elizabeth would come into UMMC infusion center, get hooked up with the chemo and then would be released (after many hours at the hospital!) that same day with the chemo to return to whereever she is staying. The chemo is 24 hours a day for 4 days. Then someone comes and disconnects her. Then there are more checks with the Dr. and then 3 weeks later, the next round starts. This will be done through the UMMC.
Dr. Cullen anticipates 2/3 rounds of chemo - each cycle 21 days so he figured 9 weeks for that. Concerning radiation treatment, she will start that in about 6 weeks There is an initial evaluation in a month, then two weeks after that Elizabeth will start daily radiation treatment,Monday through Friday, for 7 weeks. That will be done in Annapolis. (eta by Maureen - This is still dependent on Dr. Cullen's advice on release to another facility. But at least much of our winter weather could be over.)
Of course, these numbers of weeks and days are not set in stone -- they are hardly set in paper!! Timing and medication and treatment will all depend on her condition and response to the treatment.
So that being said, Maureen and Dick and Vince and I will work out who does what when and where. We will not be taking her to NC until we see the results of the treatment and the Dr evaluates her. So we will be coming to MD to stay when it's our turn at bat. Those details follow when we have them.
We are returning to WNC on Tuesday and will be back in MD ....... whenever!!