12-23-2009, 02:30 PM
|
||||
|
||||
Nearly Christmas for Bekah
The news from AZ has continued to be up and down with one med added, another taken off etc etc. One issue compounds another benefit but the good news is that Bekah is still alive, has had a day or two at home here and there and 6 months have passed since her original diagnosis. Where there's life, there's hope.
~~~~~~~~~ Hi, Quick note...Bekah is doing so much better! The Dr. pulled her off some meds temporarily and added 2 blood pressure meds. (she has 2 patches on the back, 1 IV and 2 oral) so her blood pressure is in check. He also is weening her off the steroids. So her blood pressure is much much better! yeah! temp went away when they gave her steroids. He said that it was inflammation from GVHD still going on. took cultures, but doesn't think that they will come back positive.  good...Thank-you Lord!Dr. still isn't sure we can return for Christmas. I think he is worried after what happened Monday with her blood pressure (It was at 160/112 when she came in yesterday). He said we shall see. Fingers crossed! My childhood friend Izzy , who is a nurse, and her family came and stayed at the RMH last night. I spent yesterday Christmas shopping with her- talk about a rush job to get presents. (That's the only time I am going to be able to do shopping!) Then we came to Tucson. Izzy babysat the kids last night and did ALL her night time meds! (4 IV and 8 oral-all differing times). She couldn't believe all the meds that Bekah gets. That was only night time and not counting morning or midday ones. Lol...I had to become an instant nurse with a BMT child. Rich and I went out and saw a movie and had a quick dinner! Wow... What a treat! I wasn't worried at all about Bekah...I knew she was in good hands! Thank-you so much for all your prayers and support. I know I keep saying it, but I am so grateful. lots of love~Sharlah
__________________
Maureen My Blog:Cooking My Life What do we live for if not to make life a little easier for someone? iPhone4G is my camera!/27" iMac/Macbook PSE10   
|
|
12-23-2009, 02:45 PM
|
||||
|
||||
|
That is heart warming to learn that Sharlah has a friend who is a nurse who can help out so that Sharlah and Rich could have a few hours respite. Sending loving thoughts to Bekah and her family, and, of course, continued prayers for her healing and recovery. Hugs for you, too, Maureen. I'm glad there was this bit of good news this week.
__________________
Merrilee   17" Mac Book Pro PSE 9.0 Bamboo Pen & Touch Sony A100 D-SLR
|
|
12-23-2009, 02:50 PM
|
||||
|
||||
|
wonderful that Sharlah could get some time at home, and out with Rich. big hugs and continued prayers for all of you.
__________________
Janice My Gear: Canon XTi, 18-55 mm lens (Canon), 75-300mm Lens (Canon), 50 mm 1.8 lens (Canon) Software: PSE 5.0, Lightroom my quilts: http://www.flickr.com/photos/2261921...7621758913540/ my blog: http://familyphotosfabric.blogspot.com/
|
|
12-23-2009, 03:13 PM
|
||||
|
||||
|
More thoughts and prayers coming your way from our family. Hope you all continue to hold strong as a family and this becomes a distant memory. Happy Holidays!
|
|
12-23-2009, 03:24 PM
|
||||
|
||||
|
Oh, Maureen, what a joy and blessing it was for Sharlah to be able to spend some time away with her dh! Her friend is a real treasure! Bekah continues to be on my heart, at this holiday time especially. Praying for continued strength and full recovery!!
__________________
Tracy Software PS CS3 Platform Mac (Naturally) Camera Canon 40D
|
|
12-23-2009, 04:24 PM
|
||||
|
||||
|
My prayers are going out to the family and Bekah!
|
|
12-23-2009, 05:38 PM
|
||||
|
||||
|
Oh Maureen, this is such a warm and welcome message from Shalah! Praise God for the little things (that are actual the most important things) like friends and quick dinners with the husband! Please know that you all are on my mind and in my prayers. Praise God that Bekah is here to enjoy the Christmas season! Thanks for keeping us updated!
Merry Christmas!
|
|
12-23-2009, 06:48 PM
|
||||
|
||||
|
Prayers continuing for you all this Christmas!
|
|
12-23-2009, 07:54 PM
|
||||
|
||||
|
Glad to hear they are finally starting to take away some of Bekah's meds
and that Sharlah was able to have some down time and go enjoy herself for a few hours. Her friend's a Gopd Send. Hoping things continue to improve and they will soon be home for good. Prayers and best wishes to your whole family.
__________________
Nikon D700 Lens Nikon 24-70 2.8, 50mm 1.4, 60mm 2.8 macro, Flash SB600 Dell PC, PSE5 and Wacom Bamboo fun
|
|
12-23-2009, 08:12 PM
|
||||
|
||||
|
continuing to pray for Bekah and her family.
|
|
12-23-2009, 08:35 PM
|
||||
|
||||
|
You are all in my prayers... hoping that the little improvements continue
__________________
We do not remember days; we remember MOMENTS My Gear: Nikon D50, Nikon D200, SB600, SB800, Nikkor F1.4 50mm, various zoom lenses PSE 8.0 for Mac and a wonderful 21.5 IMAC Wacom Intuos 4
|
|
12-23-2009, 08:59 PM
|
||||
|
||||
|
How wonderful that Sharlah and Rich got to have a little time out alone..can only imagine how much they needed that...her friend is heaven sent! Hope that Bekah continues to improve and go home soon! Will continue to keep her and your family in my prayers! Maybe the new year will bring remission!
|
|
12-23-2009, 09:08 PM
|
||||
|
||||
|
My prayers include you and yours with hopes for a Merry Christmas for you all.
__________________
My Equipment: Nikon D90 Lenses:Nikkor AF-S 50mm/1.4 G Nikkor AF-S 18-105 DX VR (soon  ) Nikkor AF-S 18-200 DX VR ll 
|
|
12-23-2009, 09:55 PM
|
|||
|
|||
|
So glad Sharlah could take a mini-break. Hope Bekah can make it home for Christmas. My prayers and heartfelt wishes continue for her and your family.
|
|
12-23-2009, 10:38 PM
|
||||
|
||||
|
Good to hear that Sharlah got a little break! Continued prayers for the family.
__________________
Angela My Gallery PC Vista PSE6 CS4 Canon Powershot A540 Canon EOS Rebel XSi EF-S 18-55mm / 55-250mm
|
|
12-23-2009, 11:18 PM
|
||||
|
||||
|
My heart goes out to this family. I wish them the best of times this Christmas.
|
|
12-24-2009, 09:33 AM
|
||||
|
||||
|
What a lovely gift for Izzy to give Rich and Sharlah some time on their own. I will continue to pray for their family and Bekah's healing. Merry Christmas to them.
__________________
Linda My gear: Nikon D700; 24-70mm 2.8; 70-200mm 2.8; 105mm 2.8; 50mm 1.4; 150-500mm 5-6.3 My software: CS5 on a PC; Lightroom 2; ACDSee 12  
|
|
12-24-2009, 03:59 PM
|
|||
|
|||
|
oh, Maureen. thanks for the update. i think of this little one every day and send up prayers that she'll recover. let's hope things continue to move in the right direction.
|
|
12-24-2009, 05:13 PM
|
||||
|
||||
|
Will pray for all concerned--for God's healing, peace, and comfort.
__________________
marnie
|
|
12-24-2009, 06:02 PM
|
||||
|
||||
|
continuing to keep Bekah in our thoughts and hopefully that 2010 will bring the good health that has been so long overdue!
__________________
Katie - owner of DesignerDigitals Find Me on Facebook My Blog : Documenting + Designing  Camera: Nikon D700 with Speedlight SB-600 Lenses: 16-35mm F4, 24-70mm F2.8, 70-200mm F2.8 Software: Adobe PSE3 and CS3, Illustrator CS3 computer platform: Mac
|
|
12-25-2009, 09:43 AM
|
||||
|
||||
|
Christmas at home...a major blessing! Thank all of you who have been supportive in so many ways. The world IS a good place. Maureen
~~~~~~~~~~~ Merry Christmas everyone! Our gift from the Lord was Bekah being able to come home for the day! Thank-you! We have to be back first thing Saturday morning, but oh...we are home for the day! We had some wonderful people who stepped in to help make this a less stressful Christmas. I want to thank-you so much! -all different people-all helping us somehow. These small things made it so much less stressful on us so that we could really enjoy this Christmas with our kids. We are so blessed by your ongoing support and prayers. Rich and I look at Bekah and truly feel blessed that she is still alive with us. Even 8 years ago, she would probably not be here with us now if this same thing had happened. The technology advancement is so rapid! (i.e...The new steroids that only treat the gut when the new stem cells attack it after BMT only came out in 2007. This alone lowered the mortality rate from these same viral infections that Bekah has.) We are truly blessed! We hope you all have a wonderful day tomorrow- Merry Christmas to all and may the Lord bless you as you have blessed us with your kindness & generousity of love towards us! Glory to God in the highest, and on earth peace, good will toward men. Luke 2:14
__________________
Maureen My Blog:Cooking My Life What do we live for if not to make life a little easier for someone? iPhone4G is my camera!/27" iMac/Macbook PSE10
|
|
12-25-2009, 10:44 AM
|
||||
|
||||
|
Thank you Maureen for sharing your wonderful news.. May you all have the best Christmas ever !!!
__________________
We do not remember days; we remember MOMENTS My Gear: Nikon D50, Nikon D200, SB600, SB800, Nikkor F1.4 50mm, various zoom lenses PSE 8.0 for Mac and a wonderful 21.5 IMAC Wacom Intuos 4
|
|
12-25-2009, 11:12 AM
|
||||
|
||||
|
This is wonderful that Bekah can spend this day at home with her family Maureen. Know my prayers are with her and you all.
|
|
12-25-2009, 04:09 PM
|
||||
|
||||
|
Oh how special! It must have made the world of difference for Bekah and her family. It must be so hard to have to spend Christmas in hospital. Thanks for the updates. My thoughts are with you and your family, too.
__________________
Camera: Canon 7D and Panasonic Lumix TZ1 (point and shoot) Lenses: Tamron F2.8 28-75mm, Canon 18-200mm f/3.5-5.6 and Sigma 50mm f/1.4 Software: CS4.0, LightRoom 2.7, ACDSee Platform: PC My blog: snippets 
|
 |
| Bookmarks |
| Thread Tools | |
| Display Modes | |
|
|
Linear Mode
