Another good report with a fun outing planned. I hope they made it today! I've been over in the Chat Room all day and my eyes are saying No More.
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+24 (after transplant)
Photo of Bekah holding her courage beads. They would only give Bekah a handful of some of the beads because she needed too many. (example hospital stays...one a month instead of our 17 times. lol! I wish!) However, they did let Bekah have all of her transfusions beads...to date 55. Holy cow! We only count red cells and platelets, I haven't counted IVIG-even though, that too, is a blood product. Transfusions are the small red beads. All the other beads stand for the other things she has gone through- chemo, surgeries, radiation, biops, tests, pokes, sickness, good and bad days- and more. I have a list. She is so so so proud of her courage beads. What a wonderful idea!
Bekah has 700 white cells!!!! I think I am in shock. She has hardly had any white cells and a zero ANC since June. Wow! The power of the Lord! I feel so blessed that we still have our Bekah. A normal white cell count is around 15,000 and ANC is 3,000. So we are moving in that direction! I can't stop thanking the Lord.
I was talking to Caterina, from COLES Foundation, and told her that there are so many times I wish that we could go back when Bekah was healthy, but then I think of how close we have become with God and I wouldn't want to change that. I would like to think that I would feel the same way no matter what the outcome, but I guess I wouldn't really know unless it was different. I praise God it isn't and thank him for the gift of our daughter.
My friend Kate is coming out today with her Aunt. Kate is the one who set up this website for me. Michael still has a cough so he won't be able to see Bekah again.
So we plan to take the kids to the little zoo here. I haven't told Bekah because I don't want her to be sad. On the other hand-------Great news!!! The Dr's think that Bekah will be discharged on Monday to come live at the Ronald McDonald House! whoopie! We still have clinic 9-4ish everyday, but eventually it will ween off as she needs less and less blood products and meds in the next 2 months. What a wonderful thing! (Still can't stop thanking the Lord- you may get sick of me saying it!) lol.